It was with great sadness this week that Rob and I learned of the passing of our friend Melanie Shouse, who we met and photographed at a St. Louis Campaign for Change meeting during our travels for the We Are the Ones Project. Melanie was a tireless local organizer for Obama during his presidential campaign, and after his election she refocused her energy on healthcare reform, a fight with which she was all too familiar.
The portrait of Melanie which we chose for the Project stands in stark contrast to the ebullient energy of many of the others included in the collection. This image, more than any other, captured an air of hope and quiet conviction, even in the face of challenges that lay ahead.
When we asked our portrait subjects to submit their “Stories of Change” for the Project, Melanie responded immediately with a personal account that was at once heart breaking and resolutely hopeful. Below is a re-posting her submission, in it’s entirety.
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“Freedom had been hunted round the globe;
Reason was considered as rebellion;
And the slavery of Fear had made men afraid to Think.
But such is the irresistible nature of Truth,
That all it asks - and all it wants
Is the Liberty of appearing.”
Tom Paine, American Revolutionary Patriot;
from Rights of Man, 1792.
I am a 40-year-old veteran of decades of Republican ideological hegemony in our nation. The tired old dogma of trickle-down economics (aka “Tax and Steal”) and imperial military bombast which emanates from today’s Washington as unchallenged gospel has pitted “red” against “blue”, white against black, green (☼) against Green ($), and finally led us to the absurdity of orange alerts to “scare the hell out of the American people”, an old tactic dredged up from the depths of the Cold War. The culmination of this dangerous, narrow ideology has driven most Americans into the red and turned our bountiful planet ashen grey as an unprecedented climate crisis driven by insatiable greed and corruption threatens to snuff out our very existence as a civilized species. The pall of sullenness and despair that has smothered America in these years, snuffing out hopes and dreams for a better future, has been painful to witness and challenging to survive
Hope has been in scarce supply in Republican America. But that would begin to change for me several years ago, when my Grandpa Joe (now passed away) introduced me to the writings of the great American Patriot Tom Paine. His clarion call to the world during the darkest days of the American Revolution would shake the foundations of monarchy around the globe, and bring a people together from all walks of life to rise up against the most powerful dynasty in modern history, the omnipotent British Empire. Reading Paine’s fiery words was like feasting on a delicious banquet after decades of wrenching hunger. This was HOPE for the future, a vision moved forward by the shot heard ’round the world from Jefferson’s mighty pen, that “all men are created equal.
That hope would serve me well in the next few years as I received an unexpected diagnosis of late-stage breast cancer at age 37, due to inadequate health insurance with exorbitant fees that kept me out of our medical system. The dreaded disease would prove to be a blessing in disguise, as the grueling pursuit of operating and growing a small business would soon give way to a more relaxed pace, with more time to read and reflect. As I moved from Tom Paine to Thomas Jefferson, Abraham Lincoln, Franklin Roosevelt and Martin Luther King in my quest for a deeper understanding of our nation’s history, it soon became clear that great men (and women) do exist, and that they achieve greatness through the power of their ideas.
When I read my first book of speeches by Abraham Lincoln, his simple and brilliant analysis of the true vision of our founding fathers struck me as if I had been born again. Lincoln’s humble beginnings never squelched his dream of acquiring a world-class education, which he achieved on his own by borrowing neighbors’ books and reading them voraciously during breaks working the fields, or by the firelight of his family’s cabin. As President, he was ridiculed in the palaces and parlors of Europe and New York, even called “the original gorilla” and worse; but he never let up in his quest for the more perfect Union that our founders envisioned. His words ring as true today as then: “I have never had a feeling politically that did not spring from the sentiments embodied in the Declaration of Independence… which gave liberty, not alone to the people of this country, but hope to all the world, for all future time. It was that which gave promise that in due time the weights would be lifted from the shoulders of all men, and that all should have an equal chance.”
Armed with these powerful ideas, I joined my community to help organize a grassroots campaign to recall a lawbreaking Mayor. More than once, I took the podium at City Hall to launch vivid speeches in defense of our Constitution and the rule of law, with help from such giants as Lincoln and Paine. We were an unusual bunch, of all political stripes and ideas, but we came together for that brief shining moment and orchestrated a successful recall movement against entrenched corruption at the local level that made international news. Unfortunately, we became the victims of our own success and soon splintered to the four winds in the partisan political faction that Washington had warned could threaten the very existence of our nation
This disappointment did not last long, though, as the winds of Change blew down toward St. Louis in 2007. On that bitter cold day of February 10, I joined a buoyant group from East St. Louis on a bus journey to Springfield, Illinois to witness our true Son of Lincoln take the stage of history on the steps of the Old State Capitol. As we marched into the throng, I was amazed and overjoyed by the massive crowd of all ages, races and backgrounds waiting with baited breath for history to be made. While there was ice in our hair, we were warmed by the hope in our hearts and joy in our souls as we contemplated the possibility of achieving an honest government of the People, by the People and for the People, the evolution of two centuries of struggle by Americans of all colors and creeds. We would no longer be divided by fear and hate, but united in hope
The day after returning from Springfield, I joined Obama for America online and in August of 2007 attended Camp Obama, the incredible grassroots training program set up by the campaign. This enabled me to initiate North County for Obama, a St. Louis Obama group that helped deliver 73% of the primary vote in our district for Barack Obama. We have been meeting regularly since August of 2007, volunteering at huge Obama rallies, organizing campaigns at local events, postcard parties, Barack-B-Ques, voter registration drives, and general community outreach. The incredible people I have met throughout this movement have sustained and nurtured my energy and optimism for the future of our country.
I was forced to pull back from the campaign temporarily in August as I returned to chemotherapy, but am doing very well and have my train tickets to the inauguration in hand (I hope to meet Joe on the Amtrak!). The happiest moment in my life will be when I stand with my wonderful mother, a hard-working Kansas City “Obama Mama”, on the steps of the Capitol on January 20 to witness the inauguration of Barack Obama as President of the United States of America. This will represent the fulfillment of Tom Paine’s vision: “We fight not to enslave, but to set a country free, and to make room upon the earth for honest men.” We’re counting on you Barack – Yes, We Can!
Melanie Shouse
Overland (St. Louis), MO
This week Melanie’s story strengthened the resolve of the president, himself, when Obama spoke of her battle with cancer and the health insurance coverage that denied her treatment. “How can I say to her … ‘We’re giving up … This is too hard’?”
Melanie Shouse’s greatest wish was to see healthcare reform enacted in her lifetime. Now, it is our responsibility to her, and those who share her struggle, to continue this fight and bring about the changes that we campaigned and voted for in 2008.
To get involved in the fight for healthcare reform go to:
http://my.barackobama.com/page/speakout/finishthejob
http://healthcareforamericanow.org
We Are the Ones we’ve been waiting for!
Melanie wanted every American to have equal access to decent health care. She worked tirelessly towards that goal, even when she felt like crap from chemo. She died keeping that goal in her heart. As a tribute to her strength in adversity and compassion for all, I have re-dedicated myself to making her goals an everyday reality. She always believed that one person could make a difference, and she has proven that to be true. Please join me in a silent moment honoring a true American hero.
Melanie’s aunt,
Elizabeth
- Elizabeth Holtzman-Goodden
It is disgusting that a young courageous woman should be struck down by cancer for not being able to get health insurance,I like so many voted for Obama hoping for a change in Health Care but I have to admit that it is a false hope now .tRepublican s stopping all ways to achieve this ,stymieing everything in Congress and Yes the weak ness of the representatives and senators unable to bring this to a conclusion . and my disapp ointment in the President not taking charge .
I am a very old British-born woman who cannot conceive of a Government whose first charge is taking care of it’s citizens social needs ,Even the Conservatives in Britain will not touch the National Health System where it is supported by nearly every subject I say nearly because with everything one find s disgruntled folk . I am lucky that I have been able to use the NHS whenever I have been visiting and expected the same to happen here when the Government changed.
- joan twiggs
I am sorry that Melanie was taken from us by cancer.
I’m a single mother of a beautiful, smart, talented 14-year-old daughter, a 49-year-old recent survivor of colorectal cancer. I am also a survivor of an auto wreck, hit by a truck in 2002, which left me with a permanent nerve injury to my lower back and left leg.
I’m now facing $30,000 in debt and about to lose my home to foreclosure, because I got cancer. I don’t even have enough money to get a lawyer to help me file for bankruptcy. I’m happy to be alive of course, for as long as I can be, as my goal is to help my daughter achieve adulthood and independence while I’m still here.
I had the same kind of cancer Farrah Fawcett had. I had a biopsy in May of 2007 and at that time was declared “cancer free.” Since we lost Farrah, though, I am quite aware that my cancer is not over, although my tumor shrunk and disappeared after torturous chemo and radiation. Cancer is a black cloud that just hangs overhead, waiting. The bad side effects, the internal and external scarring, the chronic pain and chronic fatigue, are daily reminders it is not over. The financial struggle and the demand that I now carry the weight and responsibility healthy people carry in this “challenged economy” make this new fight for survival, in many ways, even tougher than the fight to beat the cancer.
I’m not even sure what my health status is and whether or not I have cancer now because I can’t afford to go back to the hospital as I should be doing for follow up care. I’ve lost my health insurance and I can’t afford to get it now. I’ve been turned down for health insurance because my chronic pain and cancer history makes me ineligible for having “pre-existing conditions.”
It’s a real battle to fight for enough money to pay my basic living expenses and for the medicine I still need to take every day just to function at all.
I am a very positive, optimistic person in spite of all the adversity I have faced and the fact that my life is basically impossible. I was a professional artist with a successful career. Now I am a hostess in a restaurant, suffering every day as I stand on my feet and legs and just keep smiling through pain that “regular people” can not imagine.
I am sorry that Melanie died, sorry that our country has turned its back on those of us who need help the most. I admit, I don’t understand any of it. The more I try to understand the reason for all of this suffering, the more bewildered I am by all of it.
If I can help you by being one more voice, one more face and life behind the statistics, I will be happy to tell my story to carry on the effort that Melanie worked for. Sarah Dees
- Sarah Dees
We need effective and real reform… Not what is being beaten down to please Republicans… Obama you have amazing ideas but you must lead…
- Heather Baer
I’m a senior citizen with limited mobility, but I will do what I can by speaking out every opportunity I get about this so very important issue. REAL healthcare reform is our responsibility to Melanie Shouse and also to all the Americans who cannot afford and do not have healthcare insurance. The insurance lobbies are so strong and the GOP propaganda machine so vicious and insidious that we have our work cut out for us. Don’t give up! I won’t in my lifetime…..
- Johnnye (Jaye) Denman
Melanie helped to draft the St. Louis Citizens for Real Health Care Reform which she signed at Supplyisunlimited.com add your name, and help us carry on the cause for Melanie.
- Mark Lodes